Recently, I asked an online support group for advice they could give to someone just starting this journey. Below are the tips they suggested:
Dealing with Doctors and Nurses
•Research everything thoroughly, but go with your gut, even if it’s against doctor’s orders.
•It is also good to keep a notebook for doctor’s visits or what meds don’t work well for Lo and the good advice you get from this site that you may need later. Would be lost without my Dr. notes
•Don’t be afraid to question doctors. They know very little about LBD. Read the rest of this entry